Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, October 14, 2008


I left the hospital this morning after seeing Mav and went to Shawnee to see the kids. I'm staying here until Friday morning and then Greg and I will trade places. It was great to see the kids. We didn't do anything productive this evening - just all fun. We played basketball, frisbee, went to eat at the new McAlister's Deli (it just opened in Shawnee today!), and went to the park. My mom is here until tomorrow morning, so I'm getting to spend some time with her, too.

About Mav: He's on 3lpm nasal cannula oxygen at 35%. He was almost to full feedings (he's getting them continuously down the yellow tube) when I left. His chest tube output on the right is pretty high. He had 700mls out the past 24 hours. They're going to try an octreotide drip - it's a medication that can decrease chest tube output. If they can get it decreased then Dr. M will probably do another pleurodesis - this time putting doxycycline in the pleural space - on the right sometime next week. I'm hoping and praying the drip will stop the chest tube drainage altogether. He got so sick the last time they put the doxy in. Greg is going to keep me updated while I'm here, so I'll keep the blog going. More tomorrow - jc

1 comment:

Anonymous said...

Mav is precious! I so enjoyed the video. It is great that your home for a little while. I'm still praying and checking on yall.
Take Care,
Lu Anne