Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, October 5, 2008

Fair day

The kids and I went to the fair today. Greg stayed at the hospital with Mav (he can't walk around that much with his back). We had a great time. It was so hard to see them go this evening. We all cried. Fall break is next week. I'm sure we'll work something out for that time. They all saw him, and he was awake and looking around one of the times they were in his room. It was so cute to see them interact with him.

He's had a pretty good day. His chest tube output is still high and they're having to give him extra sodium and FFP (plasma). They're planning on giving him another day or so before deciding what/if something needs to be done surgically. I was pretty bummed about the idea of him having another surgery and his nurse looked up over her glasses and said, "You know it's a miracle he's still here..." to which I said "Yes, I know." Then she said, "This surgery will just be a minor blip on the radar compared to everything else." I know she's right, and I just have to keep all this in perspective. He's off ecmo and his chest is closed and we still have him. God has been so good. We're so thankful for those things. We're just wanting to get him home. I didn't have time to upload pics. I just enjoyed my time with the kids. I think there's a way to send them here from my phone. I'll try to figure that out and post if I can. Thanks for your thoughts and prayers - love you all - jc.


Anonymous said...

Sorry, I did not get to the Hospital this weekend to see you and the little guy but you had the kids and Gregs parents and Brown and Sandy coming so I figured you had all the support you could probably handle there in person. I love you and am thinking of all of you and I send you my love and faith that all will be OK. We had also gone to Arlington to go to the Texas State Fair Friday. You know Terry if there is a fair he thinks he has to go. We had a good time but were glad to get home. I hope you guys get great news and updates this week and you get to bring Mav home soon and no further surgeries are needed, but if they are they go perfectly with out any problems. Love you Cindy.

Anonymous said...

I'm sorry to hear about the "blip" but overall your news has been SO GOOD! Go back and read some of your earlier blogs if you need any reminder of just how far your little guy has come!! You remain in our thoughts and prayers daily! Hang in there! Gaynell