Doing well

The computers were tied up all day yesterday, so I didn't get to post. His mediastinal tube was removed yesterday - yea! He still has his two chest tubes and they are putting out quite a bit of drainage, so they aren't going to be able to remove those for awhile, but Dr. M said we can hold him this weekend! I think they are also going to try to start bottle feedings today. I was just in to see him and he was wide awake. He just looked at me while I was talking to him. We had a good conversation for about 20 minutes, then he fell back asleep. He's still on high flow nasal cannula and doing well - no threats of re-intubation. His electrolytes are still messed up and they're having to replace his chest tube drainage ml for ml with a special concoction, and he's getting doses of calcium and has bicarb in his IV fluids. They've stopped his lasix for now and held his dose of ampho-b yesterday due to his electrolytes. I spoke with the infectious disease doctor yesterday and it seems little man has a pretty rare fungal infection (curvularia). He has had the lab send it off for sensitivity to see what all drugs can be used to treat it. The good news is so far it looks like it's limited to his incision. His blood cultures have all been negative. The bad news is he says it will probably be a longer course than 2 weeks like we were initially told by the intensivists. So, you know what that means...
Greg's parents and sis and bro-in-law came down yesterday and saw little Mav for the first time. They were just smitten with him, of course. They brought us some prayer-grams from our IBC family. Thank you all for your continued prayers. It's so uplifting to read your words of encouragement. I'll try to post some pics today. Mom is bringing her laptop. Love you all - jc