Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, October 11, 2008

Baby steps forward

Mav has had a better day. They are weaning his epi a little and have been able to go down on his ventilator rate. They started the diruetic coctail back up and he is losing alot more fluid. He's pretty fussy when he's awake - they've turned off his fentanyl drip - but he's getting doses of ativan and morphine when he needs them. They're planning on starting some small feedings down his tube tomorrow. Hopefully he'll tolerate them without any difficulty and his chest tube output won't turn cloudy with the feeds. I'll let you know how tomorrow goes. Love you all - jc

1 comment:

Anonymous said...

We are thankful to read about the babysteps!! We have not stopped praying or thinking about you all often. We will begin to pray for some big steps to accompany those baby steps forward. Love you guys!! Hugs, amanda