Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, October 10, 2008

Hanging in there

Last night was pretty smooth, then today was kind of rough.  He had an episode where he dropped his blood pressure.  They did a heart echo, and things looked ok.  They replaced his left chest tube and placed a new arterial line in his left wrist.  He hasn't been able to wean any on his epi or milrinone.  They turned off the dopamine and increased the epi.  They are placing him on a lasix drip tonight to try to get some of the fluid off.  Two nights ago they drew blood cultures when he wasn't doing so well and they came back positive tonight (meaning he has an infection in his blood).  He's already on vancomycin and mirapentum (very strong antibiotics) (sp?) - they placed him on those the same night they did his cultures.  It's good he was already on them since he does have an infection - things could've been worse.  He hasn't been able to wean any on the ventilator today.  Maybe tomorrow will be better.  He'll be one month old on Sunday - it's hard to believe.  We have so many things to be thankful for, but sometimes it hard not to think about all the normal things we're missing (normal baby things, normal time with the kids, etc.).  Enjoy your normal things and your routines.  That's one thing I definitely won't take for granted after leaving here.  I am thankful he's still alive and fighting, and I'm thankful for all your thoughts and prayers.  Love you all - jc


Anonymous said...

I love you guys and it breaks my heart that you are all going through such a rough time. I hope things get better soon and little Maverick will bounce back fast and you all get to come home soon. I am sure you and Gred are exhausted. We are all praying for Maverick and You ang Greg. If you need anything I am here and all you have to do is let me know if there is anything I can do to help. Your Aunt Cindy

Anonymous said...

Hey Sis and Greg,
I continue to pray for you all. I hope that today is a better day and each day there after keeps getting better and better. We miss you very much and cannot wait until we hear the words WE ARE ON OUR WAY HOME!!! Give me a call when you get a chance. Keep in touch.
Love you,