Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, October 7, 2008

Holding Mav

We got to hold little Mav tonight. It was the first time Greg had held him, and I hadn't held him since the morning of his surgery. It was very nice. I've always taken for granted being able to hold my babies - this has given me a new appreciation for it. I now know what many of the NICU moms have to go through. His surgery is still scheduled for 1200 tomorrow and shouldn't take very long. I'll post when the surgery is over. Dr. Estre - the infectious disease doctor came and spoke with us today. Mav is probably going to be on the IV ampho-B for several more weeks, but he did say that we could probably have home health finish the course if he was otherwise ready to go home. That's encouraging. Keep little Mav in your prayers - we're hoping this will take care of the chest tube output. More tomorrow - jc

1 comment:

David said...

Hi Juli & Greg,
We will be thinking about you all and baby Mav today during the surgery. I'm so glad for all his progress and this, in the end, will be one more step along that road. We miss you all and can't wait for all of you to come home. Take care,