Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, October 16, 2008

Change in plans

Mav is still having quite a bit of output from the right chest tube, but it was down a little from the previous 24 hours. His oxygen is down to 1/4lpm and was at 80% this morning. They were weaning him as he tolerated it - I just forgot to ask Greg what it was down to this evening. His left chest tube was removed today and Greg got to hold him for awhile! They also took out his foley catheter yesterday. The plan is still to do a pleurodesis on the right on Monday. I'm just praying he tolerates it well and doesn't have the same issues he had last time.

The kids and I have had a great time together. This evening the reality of me leaving tomorrow started to set in. We had some tears and a tummy ache, then we talked to Greg and we all decided that I would stay until Sunday. Greg is planning on coming back Thursday and staying until Monday. I think it might be better to say goodbye once per weekend. This has been so difficult. I feel like I need to be in two places at once - and I know Greg feels the same. I think once we get little Mav home with the other kiddos we won't want to be away for quite awhile. I'm going to go snuggle with the kids - more tomorrow... jc

1 comment:

Jamie Bergsten said...

Juli,

I had started to worry when there weren't updates for a few days. I'm glad that all was well when you left Dallas. I'm sure the kids have been thrilled to spend their fall break with you. The video of the baby is so cute; he looks good and has color in his little cheeks. I "check in" on you guys almost every day, and Olivia and I include your family in our prayers every night. If the doctor is able to do that procedure tomorrow, I hope that all goes well.

Take care!

Jamie Bergsten