Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, October 6, 2008

"the appendectomy of thoracic surgery"

Mav had a good day today, but we talked to Dr. M today and he needs the surgery. The surgery is a thoracic lymphatic duct ligation. Dr. M calls it "the appendectomy of thoracic surgery" and says as far as surgeries go it should be no big deal compared to everything else. He will go in through the right side of his chest and find the duct that is leaking and tie it off. This should take care of the chest tube drainage, hopefully. He's been having between 800-1000mls (around a liter) out per day. The poor little guy only weighs 3kg. When the drainage slows down, his need for blood products and electrolyte replacement should slow down as well. He'll have to be re-intubated for the surgery, but Dr. M says he should be weaned back off the vent in 24-48 hours. If his chest tube drainage falls as they think it should, he'll be back on tube feedings a few days after surgery. He's having the surgery on Wednesday around 12:00. I'm praying this is the road to a speedy recovery.

Greg has some tests scheduled on his back this week to see if there is a problem below the fusion, then he has an appointment with the spine specialist next week to go over the results. Hopefully we'll be able to find the cause of this continued back pain. Keep him in your prayers as well. Thanks - jc


Dianna said...

We are lifting Mav and the family up to the Lord daily...I will continue to pray for his speedy recovery and that you all will get to be home soon and that Greg gets the relief he needs! Love you all!

Anonymous said...

We are praying for all of you! I will be praying specifically around noon tomorrow.

Hang in there, friend! God will bring this long journey to an end at just the right time for Mav. The nurse was right, in the grand scheme of his life, this will seem like a blip. Albeit, a stressful blip for you, but something He has equipped you to endure.

I love you! Kristi

teresa said...

We will be thinking of you all as we always do and praying that everything goes just as planned. Also hope that Greg can find some relief very soon. I am just so thankful for all of the doctors and nurses taking care of not only Maverick, but you and Greg also. Take care - we love you guys - we will say an extra special prayer for Maverick and Greg...Teresa