Procedure day

Sorry it's been so long. I was busy with the kids. I really enjoyed my visit home. We just did fun things and hung out together - I even let them ride bikes in Walmart when we went. That is so not me...

So, little Mav, little Mav - he is just on his own schedule. The latter part of the week was good. Greg took a video of him looking and talking to his mobile. If I can figure out a way I will post it on here. Greg held him again while I was gone, then Saturday night he started having a hard time breathing. They placed him back on a high flow nasal cannula, but he continued to have difficulty. He had gotten pretty dehydrated due to all the chest tube output - they had been replacing the output 1/2 ml for every 1ml he had out, but that wasn't quite enough. He also needed some blood. They messed with his meds and everything until Sunday evening, and his breathing was still very labored, so they intubated him. He's back on the vent now. They were going to place him on it this morning for the procedure anyway, but I would've rather that it was just for the procedure instead of him needing it - know what I mean? He did have the pleurodesis at around 11:30 this morning. He was in alot of pain at first, but many doses of fentanyl later and after an increase on his fentanyl drip - he now seems to be pretty comfortable. They had restarted his epi drip yesterday and his milrinone because he needed them, and he probably would've been started back on them today after the procedure anyway. So far he's tolerating the procedure, but the next 48 hours or so will be the testing time. Hopefully he won't have as bad of a reaction this time. Keep praying. Love you all - I'll be better about updating this week. jc