Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, October 1, 2008

Steady progress

Mav had another good day today. They turned off his epi drip and he tolerated it without any problems. His milrinone is still on, but it's just on the minimum dose. He did pressure support trials on his vent today and has tolerated those without any problems. He should be extubated tomorrow or Friday! His mediastinal tube will come out as soon as the drainage slows down - hopefully in the next few days. We're slowly getting closer to holding him.
The kids are coming down this weekend - we can't wait to see them. More tomorrow - jc

1 comment:

Polly said...

Juli I am so glad you are going to get to see the kiddos this weekend. We all miss you and are looking forward to you bringing that sweet boy home. It is so good to hear the cheer in your blogs lately. I am still praying for little Mav and you and Greg and the kids. We love you all! Polly

P.S. Sorry I can't think of any good funny stories! I bet Marla could post a good one.