Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, October 15, 2008

Chylous again

Mav was up to full feedings last night and his chest tube output started turning chylous again. They had to stop his feedings and start him back on TPN (IV nutrition). They are taking his left chest tube out tomorrow, though. He's down to 1 1/2 lpm of oxygen.

The kids and I went to the park for awhile and ran around some today. My dad and grandmother came to visit. They hadn't seen me or the kids since Mav was born. I did some laundry today and didn't mind it at all. It's nice to be home - it would be better if Mav and Greg could be here, too. I'll keep you all updated - jc.


Angela Jones said...

We are still praying for you all. I'm so glad you got to come home for a few days. You probably really needed a break. Little Mav is so cute. He looks just like you!

cindy said...

Hope you're enjoying your time at home with the kids! Great video. Sorry about the drainage. Big hug, Cindy