Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, October 26, 2008

Mav had his foley catheter taken out today - I'm sure that's more comfortable for him. He's still on his epi and nor-epi - they haven't weaned them any further. They added milrinone today for his peripheral perfusion. They turned his ventilator rate down a little. He's off the diuretic coctail and remains on a lasix drip. He's looking more edematous, but they don't want to diurese (get the fluid off) him too quickly. The good news is he's had no output from his chest tube in the last 24 hours! Happy Dance! His left post-tibial art line stopped working today and they took it out. They're planning on leaving it out unless he starts misbehaving since they've used all his distal extremity sites.

I've decided while I'm home next week I'm going to try to make a positioner for Mav. He somehow seems to slide back on his back when he's positioned on his side - sneaky little guy. Who knows - maybe this will be my one good idea. More tomorrow - jc

1 comment:

Anonymous said...

Juli & Greg,
We continue to watch for your posts faithfully and share your joy with Mav's progress. We have continued to pray for the health of your family as a whole and your other kids as they are away from you. You are an amazing example to us all and we know that God has great things planned for each of you.
Hang in there - Tom & Gordona Rowell