Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, October 23, 2008

Still down!

Chest tube output is still down - yea! It has dropped from 1/2 liter per day to under 2 ounces per day. They are slowly weaning his nor-epi and they have started the diuretic coctail back up to try to get some of the fluid off. He was so edematous last night that he couldn't open his eyes. Today he is still very swollen but is able to open them. He's gained about 2 1/2 pounds since Monday. They're not going to make any major changes over the next few days. More tomorrow - jc

4 comments:

Anonymous said...

Fantastic news! We are still praying constantly and it has been a relief to read these latest updates. Maverick (and your entire family) have been through so much. Keep the good news coming!

Love you bunches!
Teresa and kids

Anonymous said...

Yay!! Yay!! Yay!! I have been checking the blog several times a day. We are continuing to pray, pray, pray and wait in anticipation for your homecoming. I am thankful the procedure worked! Hang in there, Juli and Greg. We love you all!! The Burchfields

Anonymous said...

Julianne,
Just wanted to let you know I'm thinking about you and keeping Maverick and your family in my thoughts and prayers! He sounds like a fighter and he's got God in his corner. Hang in there sister. Love and prayers...Tracy Combs (mediflight)

David said...

Hi Juli,
So good to visit with you the other day. I was very glad to read that the chest tube drainage has remained low. I'll be hoping that this is the beginning of a long series of ups for baby Mav. I watched the paci video and he is just so precious. You just want to kiss him all over!
I look forward to seeing your family today. Greg & kids are coming over so I can try to make Maddie into an 80's queen!
Thinking of you,
Meredith