Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, November 30, 2008

Mav is sleeping a lot today. He hadn't been sleeping much at all and his blood pressure was trending up, so last night they gave him a dose of methadone and he's been very sleepy since then. They went back up on his vent just to let him rest and gain some strength. They're on every other hour dialysis right now. I'm just ready to see him make some great progress for several days in a row.

Greg and the kids went back to Shawnee today. We had a good time together. Thanks to Heather and Anais for letting us stay at their house. I stayed there a little longer today to clean up after the bunch left and when I got ready to leave I noticed the key left for me was the key to the truck. The car was in the driveway :( My sweet sister-in-law, Shelley, and her kids came to my rescue. They picked me up and took me to the hospital. Greg is going to mail my keys down here tomorrow. I think they're all settling in well. I sure miss them. More tomorrow - jc
Posted by at

1 comment:

Anonymous said...

Juli,

I am praying for you and little mav and your whole family. Please know that I am here for you if you need me.

jodi

December 1, 2008 at 8:53 AM

Post a Comment

Subscribe to: Post Comments (Atom)