This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.
This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.
This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.
Monday, March 30, 2009
Mav from Dec 14th
I was looking through my pics on my phone and came across this one. He was so expressive and loved his paci. Oh, how I miss him...
3 comments:
Anonymous
said...
Juli - each night when I read your blog, I struggle for just the right thing to say...or a funny story to tell you. Each night, I start typing and then don't send it. Tonight, I will send it. I have heard that when something terrible happens to someone, they turn away from God...don't know why...don't know if deep down we are angry with God and just can't believe that He didn't do what we so desperately asked Him to do. I think sometimes we don't even realize we do that and try to fix it ourselves...I know that I have done the very same thing. It is at those times in my life that I realized God was there the entire time, just waiting for me to come back...even though I never thought I left Him. I also have a difficult time going to church since Maverick passed. I have to leave for a minute and then go back in after I have composed myself...it could be the music or even when the preacher says something that makes me think of you guys. We are all disappointed that things didn't work out how we had planned...I know you wanted so very much to bring sweet Maverick home...we all wish you could have. He fought for so long and was so strong. I don't know why things happened as they did; all I do know is that God has a very special angel sitting on His lap right now and Maverick is just giggling! I wish there was something I could say to make your heart quit breaking, but I realize there is nothing anyone can say or do to ease your pain...this is something that you and Greg will have to work through and no one can do it for you. I just want you guys to know that we all love you, pray for you and continue to uplift you in prayer. I am so glad that you are continuing with your blog..keep showing the pictures of Maverick and the kiddos. And, I hope you continue to dream of Maverick. I really believe that when you dream of Maverick, he is visiting you - telling you that he is okay. Sweet dreams, Juli. I love you...Teresa
Little man Mav makes my heart skip a beat whenever you post a picture or a video. I could just stare at him for so long. I never even met the little guy but he stays with you. I am always thinking of you and sending happy thoughts. I love your stories about the kids:)
Sweet, sweet little man! I love you Juli. And the entire Clark family. You are on my mind as always. I am so proud of your desire to be a nurse practitioner. You will be excellent at it.I am so glad that your mom is coming into town. There is no one who can take care of us and love on us like our moms. Love you my sister- Kim
I am a mother to Maddie, Carter, Chloe, and of course Maverick - who is now in heaven. I am wife to Greg. I am an RN and worked for Mediflight of Oklahoma transporting critically ill neonates throughout the state prior to Mav's birth. I am currently taking some time off to enjoy my kids before I start nurse practitioner school in the fall.
3 comments:
Juli - each night when I read your blog, I struggle for just the right thing to say...or a funny story to tell you. Each night, I start typing and then don't send it. Tonight, I will send it. I have heard that when something terrible happens to someone, they turn away from God...don't know why...don't know if deep down we are angry with God and just can't believe that He didn't do what we so desperately asked Him to do. I think sometimes we don't even realize we do that and try to fix it ourselves...I know that I have done the very same thing. It is at those times in my life that I realized God was there the entire time, just waiting for me to come back...even though I never thought I left Him. I also have a difficult time going to church since Maverick passed. I have to leave for a minute and then go back in after I have composed myself...it could be the music or even when the preacher says something that makes me think of you guys. We are all disappointed that things didn't work out how we had planned...I know you wanted so very much to bring sweet Maverick home...we all wish you could have. He fought for so long and was so strong. I don't know why things happened as they did; all I do know is that God has a very special angel sitting on His lap right now and Maverick is just giggling! I wish there was something I could say to make your heart quit breaking, but I realize there is nothing anyone can say or do to ease your pain...this is something that you and Greg will have to work through and no one can do it for you. I just want you guys to know that we all love you, pray for you and continue to uplift you in prayer. I am so glad that you are continuing with your blog..keep showing the pictures of Maverick and the kiddos. And, I hope you continue to dream of Maverick. I really believe that when you dream of Maverick, he is visiting you - telling you that he is okay. Sweet dreams, Juli. I love you...Teresa
Little man Mav makes my heart skip a beat whenever you post a picture or a video. I could just stare at him for so long. I never even met the little guy but he stays with you.
I am always thinking of you and sending happy thoughts.
I love your stories about the kids:)
Vanessa Blutrich<3
Sweet, sweet little man! I love you Juli. And the entire Clark family. You are on my mind as always. I am so proud of your desire to be a nurse practitioner. You will be excellent at it.I am so glad that your mom is coming into town. There is no one who can take care of us and love on us like our moms.
Love you my sister-
Kim
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