Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, March 26, 2009

Staying busy

I stayed pretty busy today. Chiro appt this am, then worked on a project with a friend. We looked through photos of Maverick to make some cards and the template we used was actually a baby announcement. Needless to say, I started crying. They'll be beautiful, though. I had lunch with a friend from the hospital, then we went to a favorite shop of mine here in Shawnee. She found some things she liked, and I found a bracelet - I love bracelets. It's silver and is inscribed with, "God grant me the serenity to accept the things I cannot change." I thought it was perfect. I'm wearing it right now. This evening I've been working on my application for nurse practitioner school. Leave it to me to wait until the last minute. It's due April first.

The kids are doing well. I'm so proud of them. I'll share a Maddie story today. When we were coming home from the cemetery on Monday, she was talking about kids her age and how so many of them don't realize how blessed they are. She went on about the things they obsess over and said, "They don't realize how unimportant all that stuff is. I mean, there are children in Africa who only eat one meal a day and have to go all weekend without food." We have friends who went to Africa with Feed the Children over spring break and they shared their pics and stories with us the other night. I think that has weighed heavily on her heart since. I thought that was a sweet story about her. I need to start telling stories about her and Carter more. I think they may get tired of the Chloe stories.

Greg and I were talking tonight about Maverick and how we miss him. He told me to smell the back of Mav's monkey. That's the stuffed animal he had for a long time - he liked to feel it. I did and it smelled like little Mav. His monkey and frog are still sitting in the living room on a table. Last week I hung a picture of him and his hand and footprints in the hall. My phone is finally sending pics again, so it should show up tonight. Love you all - jc

1 comment:

Anonymous said...

Hi Juli/Greg,

What a beautiful pic of Mav on your wall. I love that.

Also love the story about Maddie. She sounds like a very mature young lady with a wonderful heart. I'm sure she gets that from you both.

Good luck on your application Juli. I know you'll do great.