Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, March 11, 2009

Avoiding Walmart, enjoying smiles

We had sundaes this evening and the kids loved them. A friend brought ice cream and all kinds of toppings over last week. What a great idea. It offset the fact that we had beans, ham, cornbread and mac and cheese for dinner. It was the grab-what-I-can-find-in-the-pantry meal. Nothing green on the plate - I know. I have just been trying to avoid Walmart like the plague. So many people, so many babies. Sometimes so many moms I just want to strangle. You know the ones... screaming at their kid, slapping them, etc. I just want to go up and do the same to them. Ungrateful for what they have - that's what they are. Don't get me wrong, I'm not a saint. I'm sure I've probably been witnessed doing less than perfect things when my kids get rowdy, but I can promise you I'm much better now.

When we were still in Dallas I went to a near-by Toys-R-Us to find Mav his first mobile. I was looking for some pacis as well. I ran into a mom with a 12-year-oldish daughter with her. They were shopping for a baby gift. They were disagreeing about something and she turned and looked at me and said, "I get to spend the rest of the week with her. She's out of school." She said it very snidely and sarcastically. I almost bit her head off, but I bit my tongue and just looked at her like she was disturbed. At this time we had been away from our kids for about six weeks. I kept thinking, "Lady, I would love to spend the rest of the week with all my kids. You have nothing to complain about."

Yesterday, Chloe and I were hanging out in the morning and I asked her if she wanted to go to school. She looked at me and said, "No, I not want to see Kinsey (that's her best friend at school). I want to stay wis you. You my bess buddy." My heart just melted. She wanted to go today, though. When she got home, she started playing with her babies. She had one in her arms and she said, "Dis baby gul was weally sick. She almos flew to heaven." I said, "Really?" She nodded and kept on playing. Later in the evening she told me her baby was in the "hossa-paytal" and was going to have "surgee" tomorrow. It's interesting to see how all this has effected her and how she incorporates it into her play.

Today was a little better for me than the past few days. It had its moments too, but overall it was a little better. If I could get the sleep issue worked out, I think that might help as well. Maddie and Carter had their dentist appointments today. I took them to McD's (the drive-thru this time) before they went back to school, so they could be the kids with the "special lunch" today. I really haven't been one to do that in the past, but the kids loved it. I'm enjoying their smiles more and more.

Just a reminder about next week... The blood drive will be Wednesday evening, March 18th from 3pm to 8pm. I know it's spring break, but I would love to see you there. Love you all -jc


Anonymous said...

My 'babies' range in age from 42 to 50 and I feel the same way you do while listening to parents yelling and griping about the little things. Time passes too quickly not to enjoy the little things with them. Your little ones and their sweet faces will bring smiles to your face and to Greg's. Smiles to the face help bring smiles to the heart.

Watts Family said...

I definitely need to work on my patience...especially when it comes to my kids. I love them with all my heart and pray for them every single day but I am imperfect. Thank goodness God loves me anyways! Reading your blog has really helped me take more time to enjoy the little things my kids do instead of letting it bug me. Don't get me wrong, I am a work in progress but thanks to Mav, I'm getting better. I will continue to pray that God will give you strength to get through each day.

Many Blessings,


Anonymous said...

I have been keeping up with your blogs and they have been such a ministry to me. My husband and I have a 16 month old boy. I find myself now, instead of getting frustrated with him because he's pulling at my legs while I'm trying to get dinner ready or clean the house. Before my thoughts were "I have to get it done this second, that's what my plan is" to allowing him to "help" me get dinner ready or even carry him around on my hip while I attempt to do some cleaning. I have at times been ungrateful for the blessings in my life. Thankyou for reminding me to take one day, one moment, one second, at a time. God is the controller of my life, my husband's life, my child's life, not me.

Brenda said...

Catching up on your blog from the last several days. My step-dad had a stroke this week so I've been at the hospital myself the last several days. He is much much better now though. But, several thoughts through that process. You are absolutely right about how much of a difference nurses make (and most probably do not even realize the light they shine). There is definitely a talent to be a great nurse - some more nurturing than others - but each seems to have a special way of taking care of patients and their families. Similar to parenthood in a way - some more nurturing than others - but each parent has an opportunity to mold the lives of their sweet children and touch the lives of so many others along the way as well.

Wal-Mart. It irks me so much to see parents yelling at their children. I try to avoid being there during the rush hours. I also remember my aunt very specifically talking about her first trip to Wal-Mart after - it hurt her to see parents not appreciating every moment with their children - but it was also hard for her to hear total strangers laughing and seeming to be happy. So, continue make meals from whatever is in the pantry - or whatever can come from the drugstore or Braum's. As long as you are able to bring smiles to the kids faces, you're succeeding at one day at a time. And the Clark family is continuing to touch the lives of everyone around....just by being yourselves and sharing with us the very same way your nursing staff touched your family's lives. Mav continues to be a ministry to so many.

Love you!