Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, September 20, 2008

A bump in the road

Well, we had scare yesterday evening.... Maverick quit producing urine, then his blood pressure started dropping. He had gained I don't know how much weight - and was very edematous. Dr. Rhees (the PICU dr) did an ultrasound of his abdomen and found pockets of fluid that had collected. He placed drainage tubes in both sides of his lower abdomen to drain the fluid. That relieved a lot of pressure from his abdominal cavity and he had around 30mls of urine output after that. His blood pressure rose, his pulmonary function improved (his lungs started working better), and he is somewhat stable now. He's continued to make urine since this incident. Lots of answered prayers! He still has some heart issues and they're tweaking some of his meds (he has 17-20 med pumps going at any given time), but hopefully we're heading toward a more stable place. His nurse cleaned him up after he stabilized - his brown hair sticks up like a mohawk when it's clean. He's so cute - even when he's edematous. We appreciate all your thoughts and prayers. We know they're being answered. More later today, I gotta get some rest. jc


Dovie said...

Juli & Greg,we are so glad our prayers were answered. We will keep praying every day. I will talk to you soon. Love You guys.

Kim said...

Juli and Greg,
What an amazing week that you have both had.I will contine to hold your family in prayer. May rest on your Father's lap today and may he give you peace. Remember that He loves Maverick even more than you,(which is hard to imagine)and wants the very best for him. You have a very sweet boy. I love you both.