Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, September 30, 2008

A pretty good day and a good laugh

Little Mav has had a pretty good day today.  They are still working on weaning his epi.  He got his 2 right arterial lines out today as well as his pacer wires.  They are giving him a trial of pressure support on his vent and hopefully he'll be able to come off the vent tomorrow.  His blood cultures are negative so far, so hopefully this infection is limited to his incision.  These computers have been busy, so I haven't been able to post when I would like.  Hopefully tomorrow won't be quite as busy - I'll post more then.  jc

PS  Ok, Dorraine, I hope you don't kill me, but I got a good laugh from your story.  Hope you don't mind that I posted it...

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3 comments:

Anonymous said...

What a great story Dorraine!!! I am laughing because it makes me realize how old I am. Girls these days don't wear pantyhose! You may have to give some more pantyhose lessons to Lacey before the wedding day and you will probably have to do a mini course for the bridesmaids too!!!
Juli, we are still praying and thankful for the progress he is making. Someone said in Bible Study that the kids are coming down this weekend--I sure hope so and I know it will be such a great time together. Love you all,Amanda

October 1, 2008 at 11:32 AM
cindy said...

Just to let you know I'm thinking of you and we enjoyed our visit so much. Things are sounding good! Love to all, Cindy

October 1, 2008 at 9:09 PM
Dianna Black said...

Oh what a day of rejoicing it is!! God is so good! I just pray that you all will have a wonderful time together, and I really hope that the little guy gets to be held by all of you this weekend..that is going to be such good news on top of the goodnews!!
Love you all muchly,
Di

October 3, 2008 at 8:57 AM

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