Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, September 23, 2008

Fluid issues

He had a good night.  Vital signs are stable.  They were able to wean some more on his drips.  Now they're just trying to get some fluid off.  His weight went up again last night.  They have stopped replacing his output and are starting a "lasix coctail" this morning (several drugs mixed together) to try to get some of this fluid off.  More later.  jc

4 comments:

cindy said...

Julianne & Greg,
It sounds very encouraging! Hope the weaning continues and you're getting some rest. I'll call on Thursday to see if you feel up for a visit. Until then know that you and Maverick are in my thoughts. Love, Cindy

Dianna said...

Oh Clark family, we love you so much...we are praying God's continued hand on you all and for those taking care of our precious little guy. I truly cannot wait to give all of you a hug...we are continually praying night and day for Little Mav...
Love you all so much,
Bryon, Dianna, Lyd, Garrett and the Kirkenator..

Anonymous said...

Juli and family,

I am so glad that things are looking up for little Maverick. Please know that there are so many people praying for him and your family. I will pray for continued strength and for Maverick to have a fighting spirit!!

Carol Bass

Anonymous said...

I am happy to hear about Maverick's steady improvement, as slow as it may seem. Thank you for your diligence in updating us frequently. When I pray for him I am consistently reminded of the song "Fingerprints of God" by Steven Curtis Chapman. Maverick is a masterpiece that God created and He isn't finished yet!
Love & Prayers, lp