Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, September 22, 2008

Turning the corner

The rest of the night went well, and this morning has been good, too. They've weaned his nor-epi as far as they want and have started weaning his epi (they're both heart meds). His milirione (sp?) is still off (another heart med). His blood pressure and heart rate are still good. He's still having adequate urine output, and his chest tubes and abdominal drains are still draining. His weight today was 6.1 kg (over 13 pounds). His birth weight was 3.5kg (7lb 8oz), so you can imagine how puffy he is. He has a lot of fluid to get rid of, but all the doctors this morning seem optimistic. More later - jc
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3 comments:

Jenn said...

Juli and Greg..
So glad that the rest of last night went well and this morning has been good so far. Just wanted you guys to know that Aaron, the girls and I continue to pray that God gives all of you the strength you need to get through this.
We love you
Jenn Stepp

September 22, 2008 at 10:06 AM
Anonymous said...

I lit a candle for Maverick at church yesterday. Soooo many prayers directed your way.Love you so much. I'm so thankful he is making progess with weaning of his drips even though it must seem like it is taking forever. Hope you can feel this big hug!!!!!! Wish I was there. Love, Michelle

September 22, 2008 at 10:20 AM
Anonymous said...

You are in our thoughts and prayers.

September 22, 2008 at 8:01 PM

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