Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, September 22, 2008

A good day

Maverick has had a good day today.  They are still weaning his epi and nor-epi, they are now only replacing half the fluid volume he's putting out every hour (it was being replaced 1:1 until this afternoon), and he's tolerating a lasix drip (a med to help get rid of the fluid) they started.  His heart rate and blood pressure have been good, his lactate levels are the lowest they've been since coming off ecmo (1.7), and his venous oxygen saturations are now in the upper 40's.  They have stopped the vecuronium (the medication that paralyzes him), so maybe sometime tomorrow he'll start moving and opening his eyes again.  The doctors are happy with his progress, but wish he was getting rid of the extra fluid more quickly.  He's going to have a PCL placed tomorrow (another type of IV access) and they're going to remove his subclavian central line and his UVC.  It's just better to have those out due to risk of infection.  The past 24 hours have been trending in the right direction.  We're so thankful.  More tomorrow - jc


Kim said...

What amazing news! Thank you Jesus! I am so thrilled little Maverick had a good day. I hope you and Greg can breath a little. What incredible parents that God has blessed Maverick with. Thank you for keeping us all posted.I love you!!

Anonymous said...

Good to hear the forward progress. Hope you and your family are resting well. You all are in our thoughts and prayers. Ted

Polly said...

We are so glad to hear Maverick is doing so well. What an amazing journey God is leading you all through. We are still praying with you. We love you all! Polly