Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, September 23, 2008

Little squirt with lots of pee!

The lasix coctail is working and during the 12 hour dayshift little Mav lost 500mls! His blood pressure is holding steady and his labs are still good. He's down to about 10 med pumps now! Dr. M is placing the picc line right now and is going to take out the left subclavian central line. His left abdominal drain is out, too. They're leaving him on minimal drips of epi and nor-epi because they said after the chest closure he'll be back on them for awhile. Dr. M says he may be able to close his chest by the end of the week. He has started opening his eyes and moving a little. It's amazing to see his little arms and legs shrinking - he was so puffy he couldn't have moved if he wanted to. Things are looking up. Keep the prayers going. They are definitely working. Love you all - jc


Anonymous said...

Wonderful! Wonderful! Wonderful! God is faithful and so very GOOD!! We'll keep praying and watching for more good news! Gaynell

Anonymous said...

praise our faithful Lord!!! Our kids have prayed for him a lot today...I can't wait to tell them in the morning!! We will keep praying. Chloe was cute in dance class today. She was standing there looking serious and I said "hi Chloe" and she smiled really big and said "hi". It made me smile. Hang in there--He is good. Love you guys. Amanda