Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, September 19, 2008

Off the pump!

YEA! He came off the pump without any problems this morning! Coming off ecmo means going back on a lot of drips, so they have been fine tuning everything this morning. Dr. M says the next 24-48 hours are the critical time period - just like after surgery, since his little heart is now doing all the work on its own. He looks good, and it's nice not to have the big machine in his room. Now I can see him on either side of his warmer. He woke up today as his nurse was giving him mouth care and stayed awake quite awhile. He was able to look at Greg and I and it seemed like he was really intent on all we were saying. It's the longest he's been able to focus - earlier in the week his eyes would roll around a bit. He was awake a little too long, though and had a little tear, so the nurse gave him some ativan to help him get comfortable and go back to sleep. He's so precious. His chest is still open, and they say he'll probably get a little more edematous before his swelling starts to go down, so they'll just have to wait a while to close his chest. He still has his chest tube, but the drainage from it is slowing down. We are very excited about how today is going so far. I'll update later this evening if I can. jc


Anonymous said...


Congratulations on your beautiful baby boy. Prayers are definitely being sent your way (and answered it seems!!). You were guided to the perfect place for your blessings. Please know that I am thinking about you and your family and sending my best.


Anonymous said...

yeah!!!!!! good job have a lot of cheerleaders right now!

Anonymous said...

That is GREAT news that he is off the pump and doing good. We continue to pray for him as well as for you guys. I cannot wait to see you guys. Hang in there and we will talk to you soon.....
Love you guys,

Anonymous said...

Tell Maverick his Great Aunt Cindy says to keep up the good work and is very proud of his strength and she can't wait to hold him and tell him how much he is loved. I love you guys and hope you have a miraculous night and know we are all praying for Gods speed in healing Mavericks little heart. Hope you are able to get some rest also,Juli!!

Anonymous said...

I understand Maverick may have encountered another setback with declining renal function. I know this must be disheartening and I am pleading with God to heal his kidneys before dialysis is required. Remember that there are hundreds (if not thousands!) of people who are praying to "Him who is able to do immeasurably more than all we ask or imagine" on behalf of your precious son. We may not have met him yet but we already love him and we're pulling for him!
With a warm embrace and lots more prayers, Gaynell