Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, September 27, 2008

Still open

Little Mav isn't quite ready to have his chest closed. Dr. M is coming in the morning to see if tomorrow is the day - if not, it will probably be Monday. We are close. Once he gets his chest closed things should start moving along a little more quickly. He started on feedings yesterday and was tolerating them well. Today the went up to 6mls/hr (a little over one teaspoon an hour - it's on a pump going continuously) and his abdominal drainage started getting cloudy - then his chest tube drainage started getting cloudy. It's called chyle and comes from his lymphatic system and basically it means he's not tolerating the fat in the breast milk... So, they had to put him on a special formula called portagen that has a different type of fat in it. He'll have to be on this for awhile, but they tell me to keep pumping - he'll eventually be able to go back to breast milk. Other than that it was a pretty uneventful day - YEA! Dr. M said we are at a point where Greg and I can get out of the hospital together, so we went to Target to pick up a few things and went to lunch. It was nice. The weather was beautiful. Have a good rest of the weekend. We appreciate all of you - jc

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