Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, September 20, 2008

a little bit better

Maverick's 6pm blood gas was the best of the day! He actually doesn't look better to me because he continues to be very edematous, but the doctor said he felt much better about where Maverick was tonight than where he was last night. He did have one episode where his heart rate dropped into the low 100's and they started the pacemaker on him (he still has temporary pacer wires in place since his chest is still open), but he went back into his own rhythm and he hasn't needed any further pacing. They were able to turn off the bicarb drip and the calcium drip this afternoon. Only one more fluid bolus has been needed today. We're just praying for a good night - one day closer to being out of the critical time period, hopefully. He's still paralyzed and sedated, so no more moving or opening his eyes for now. He just needs the rest. jc


Anonymous said...

We are still praying for Maverick and the rest of your family. I am so glad for his impprovement!
Lu Anne

Amy Jennings said...

Juli & Greg,
Just want you to know that you are in our constant thoughts and prayers. May our God of comfort be constantly holding you tight. I know that He will carry you through. We love you guys, Amy and Paul

Teresa said...

I pray that Maverick had a good night. Been thinking constantly about you guys and praying for you and little sweet Maverick. Get some rest and know that there are hundreds of people sending prayers. God is good...

David said...

Juli & Greg,
So glad that the blood gases were good and that he's pushing through this critical time. The agony of the constant ups and downs must be so difficult to go through. We're just sending our thoughts your way for the ups to keep edging out the downs. Just know that there's lots of support waiting for and your little guy back home. Looking forward to the updated pictures.