Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, September 25, 2008

Steady progress

Mav has had a good day. He had some issues with his heart rate this morning, but they replaced some electrolytes and he hasn't had a problem since. He's continuing to have a lot of urine output. They are just waiting to see how he looks tomorrow morning to see if he's ready to have his chest closed or not. I asked Dr. M if the 24-48 hours after chest closure are another critical time (like after surgery and when he came off ecmo) and he said, "yes, but not as bad." Hopefully, if they close him tomorrow, things will go smoothly this time. Keep him in your prayers.

PS Thanks for your funny story, it made me laugh, Sherry - yes, I remember you.
PSS I still haven't seen the nurses that I gave the leftovers to. I think one of them is back tomorrow...

More tomorrow - jc

6 comments:

michele said...

HI Julie,

Just wanted to leave you a quick line and let you know that your dad and moms were able to see the blog today and we all agree...Mav is such a cutie!!!! I can't wait to see him!! You, Greg, Mav and the WHOLE family are in my prayers. See you soon.

Love you...Michele

Kim said...

So glad to hear that the lttle guy is doing so well. What a strong man he is going to be. I love you guys and wish I could physically be with you. You in my heart.
Love,
Kim
P.s. Juli quit being so cheap, buy those nurses some cheesecake! J/K! And by the way, I was the PE teacher yesterday. Again, stop laughing...

Anonymous said...

I am so thankful for his progress this week. God has been so gracious. I hope he is strong enough to have his little chest closed tomorrow and continue on this recovery path.

I was glad to hear the laughter in your voice. Some day soon, there will be laughter ringing all through the Clark house!

I love you - Kristi

Dianna said...

Hey sweet family...
I am so glad to hear the good news that we are heading up hill. I can't wait to see you all!
The cheesecake story is hilarious!

Have a great day!...we are continuing to keep all of you Clark's in our prayers...let me know if the kids are going to see you this weekend or coming to the party...
Love,
Di

Anonymous said...

YAY!!! YAY!!! I am so thankful and we are continuing to pray! I can't wait to hear what the nurse says about her "leftovers"!!! Have a wonderful day Clark Family. Amanda

Anonymous said...

That was quite possibly the funniest story ever! Praise God that Mav is doing so well. We are continuing to pray and think of you all so often. Hang in there. Comic relief is often the only thing that gets us through the trials. -the Rowells