Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, September 28, 2008

He's closed!

Dr. M came in this morning and said he was going to close Mav today. He finished up at about 10:45am, and he tolerated it well. He's been out of it today due to the meds they gave him this morning, but he's starting to wake up this evening. He's looking more and more like himself everyday. Now we should be able to get him off the vent in a few days and start getting some of his tubes and wires removed. We are ready to hold this baby!
Another bright spot in my day - my friends Cindy, Mary and Michelle came down from OKC today and saw little Mav and we went to lunch and browsed around Central Market for awhile. It's nice to get out and laugh a little. Thanks for coming (we missed you, Donna!).
Really, there's not much else new here. He's still on his epi drip - they had to go up just a little after they closed his chest, but they didn't have to add any other heart meds! He's on a lasix drip, antibiotics, TPN and lipids. He still has 2 chest tubes, one mediastinal tube and one abdominal drain. His pacer wires are still in place - I think they will be for a few days, and he still has his RA line and his art line. I'll let you all know as we start losing things. We're hoping this process moves along quickly. We miss the kiddos and are ready to get home. Thanks for all your thoughts and prayers - we're beginning to see the light at the end of the tunnel! jc


Marla said...

Juli, I'm glad that you got to get out for a little while. We are so happy for Maverick's progress. We are continuing to pray for little Maverick and your entire family. Love, Your Friends Marla and Family

Anonymous said...

YAY!!!!!!!!!! YAY!!!!!!! We are so thankful!! We continue to pray for baby Maverick and all of you. The girls keep asking if I know where you all live in Shawnee because "we have to go see baby Maverick." :) We look forward to the day when we can meet him. Love you guys, Amanda

Anonymous said...

I'm so happy he's progressing so well. I know yall are all tired and getting homesick. I'm still prayig..........Love,
Lu Anne

David said...

So glad to read your good news! Take care of yourselves and hope to see all 3 of you soon!