Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, September 24, 2008

Doing well

Maverick had a good night and today has been good as well.  He's down 1 liter of fluid to date!  He's starting to look more like himself, although his little face is still edematous.  They have weaned his lasix coctail in half and he's still having good urine output. His nor-epi was turned off at 1000 today, so the only heart related med he's on is his epi drip.  Right now they are planning on keeping him on it until after his chest closure.  Hopefully we'll still be able to do that by the end of the week.  He still has his chest tubes and one abdominal drain and his mediastinal chest tube, but maybe they'll be able to take them out within the next week.  I actually got out of the hospital today.  It's the first time I've been on an outing since we've been here (I've been too scared to leave) - it's pretty bright outside!  My friend, Dana, from Durant came down and we went to the Cheesecake factory - yum.  Then we went to Barnes and Noble to get little Mav some books.  I run out of things to talk to him about, and the only book I've found up here so far that I like is Green Eggs and Ham.  I'm sure it gets old hearing the same one over and over.  He's starting to move a little more and has started sucking on his tongue again.  It's so nice to see him more alert.  jc

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