Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, September 18, 2008

good news

Yesterday we had a little setback. Maverick's blood pressure and heart rate dropped. They did a heart echo and it showed an accumulation of blood behind the heart that his chest tube wasn't able to drain. They had to open the chest back up (his chest was still open - so they just had to remove the membrane covering) and drain the collection of blood. Dr. Mendeloff saw a couple areas of bleeding and put a few sutures in. He tolerated the entire procedure well, then he had a good night. This morning they did another echo on his heart while they turned the settings down low on the ecmo pump. His heart function was very good, so they are going to start weaning him from the ecmo pump today. He could be off as early as tomorrow! We are so encouraged. The doctors and nurses are very happy with his progress. On a lighter note - if you haven't seen the family in awhile, we had my talented friend Dejah Quinn take some pictures of us the week before Mav was born. Her blog is scroll down a little and you'll see the whole family - and the belly. Thank you all for your prayers - God is good! jc

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