Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, September 16, 2008

rollercoaster ride

Well, Maverick got out of surgery about 10:15 last night. He ended up having to go on ecmo - it's like a smaller version of the heart-lung bypass machine (check google for more info) around 1:30. It was a controlled situation. His blood pressure was getting low and his base deficit was high. They wanted him to go on before he had any organ damage. They placed the cannulas through the membrane on his chest. He will probably be on for the next several days. All that said, he looks good. He's nice and pink and not horribly swollen. They have taken him off the medicine that paralyzes him, but he's still on pain medication. He has opened his eyes and moves his little hands and feet occasionally and sucks on his tongue. His urine output is good and his vital signs are pretty stable. He's having a lot of blood out from his chest tube (the tube that is around his heart incision draining the blood that collects), so Dr. Mendeloff may open the membrane on his chest and see if there are any little bleeders that need to be repaired. They'll just do that in the room he's in. We just spoke with the cardiologist and she is very encouraged by how he looks and by his vital signs and urine output. She thinks he'll pull through this. That is very encouraging to me. Keep praying - love you guys. jc


Anonymous said...

Clark Family,
Was checking Dejah's Blog last night and saw your beautiful family and pregnancy pictuures. So glad you were able to capture that moment. We are praying for all of you.
Lot of Love,

Anonymous said...

Thanks for the update. I am still praying and thinking about you non-stop!I trust God to walk with you through this valley. He will be your Comforter and Strength. I love you - Kristi

Anonymous said...

Greg and Juli,

Amy and I read that the doctors are encoraged. That certainly means a lot. You have been blessed by your doctors attention to detail through this entire pregnancy and it is commendable. We are thrilled for the good news and pray that God sustains your family through this special and fearful time. Coping with a newborn is hard enough at home and healthy, what is being asked of you is enough to break to spirit of lesser individuals. I have a feeling it is only proving yours. Godspeed.