Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, September 29, 2008

Two more weeks... :(

Little Mav has been doing well since his closure, but we got some disappointing news this evening. When they closed his chest they sent a culture and it came back positive for some type of fungus. They haven't isolated the type yet, but he'll have to be on ampho-b (a strong anti-fungal given IV) for 14 days... So, we'll still be here for awhile. Hopefully he'll stay stable and won't get septic with this - keep that in your prayers. His abdominal drain was removed today and they're removing his two right atrial lines tomorrow morning. If he tolerates the removal of the atrial lines without much bleeding they'll remove the mediastinal tube tomorrow evening. They've been able to turn his ventilator rate down to 12 breaths per minute, and they're weaning his epi. If he tolerates it, his epi should be off tomorrow morning. More tomorrow. jc

2 comments:

Chris said...

Juli:

I just read your blog and I'm sad with you. I know you are not hopeless, but understandably sad. One day this will all be a blur, but today it is a BIG Bummer! I don't know if now is a good time to share a funny story or not, but it just happened with my baby. My 22 year old baby.

Her and her boyfriend have been looking at rings of late and so we've started joking and glancing through wedding planner books. Not too seriously, just for fun. Anyway, I was reading advice to her from one and it said that you should coordinate the colors of hosiery for your wedding party (OK, well I did not know that). It went on to say that the bride should have 2-3 extra pair on hand in case of runs. My daughter said (she will kill me for this), "Oh that's a great idea! I know I will be so nervous and you know how bad I get the runs when I'm nervous like that!" I said, "Lacey, not that kind of runs." It's been 2 weeks and I'm still laughing about it.

We love you all and will continue to pray. You are such a great mom and dad and I know you trust God and the Dr.'s timeline.

Dorraine Hudson

Anonymous said...

Hey Sweet Friend!
You, Greg, and little Mav have been on my mind all day. Just wanted to check in and remind you all how much I love you, but even more important, how much God loves you!! You are AMAZING parents to all your little ones!