Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, September 20, 2008

raking leaves

Well, the rest of the night was uneventful.  This morning we were in the room when Dr. M and the PICU intensivist were making rounds.  Dr. M says that he is still very sick and they would like him to be improving more quickly, but if we can just maintain for the next 24-48 hours he would be happy.  Dr. M made the analogy (is that the right word?) that right now his care is like trying to rake leaves into a pile, but the breeze keeps blowing.  They've added more medications today - a hydrocortisone drip (another blood pressure med - he's currently on an epi drip, a nor-epi drip, and a milrinone drip).  He says his heart is "stiff"  the contractility is good, it just needs to relax so it can fill - then they can stop giving him the volume/fluid boluses.  They've changed his antibiotic to a stronger one - his white blood count is slowly creeping up.  They say they're just trying to stay ahead of things.  They're also adding some type of thyroid stimulant.  I've quit trying to understand everything.  I really think I'd be better off not knowing anything medical.  It just makes me more anxious.  I'm just trying today to look at the positives.  His urine output is still good.  His abdominal drains are draining quite a bit of fluid.  His blood pressure has remained stable and they've only had to give him two boluses of albumin today. I don't think he's had to get any blood today.  Thanks for the thoughts and prayers.  If you've tried to call in the past few days and I haven't answered, I'm sorry - I just can't talk about this stuff now.  It's just easier to type it out.  Love you all - jc

2 comments:

Anonymous said...

Greg & Juli,
Our hearts hurt for you and all you are going through but God is good and we know He will give you the strength to endure. We are praying for peace and lots of rest. Hang in there.
Tom & Gordona Rowell

Dianna said...

Praying...for everything.