Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, September 17, 2008

hanging in there

Little Maverick had a good night. Nothing has changed - which for now is good. He's still on ecmo, still has good urine output, and his chest tube drainage is decreasing (when they removed the clot last night it picked up a little, but nothing to be concerned about). He still opens his little eyes some and moves his arms and legs some. He's getting a lot more edematous, but it will get better when he comes off ecmo. They are planning on doing a heart echo tomorrow and turning down the flow on the pump while they do it to see how his heart is functioning. If it's doing well they will start weaning him off ecmo tomorrow! More later - jc


David said...

Hi Juli & Greg,
Sounds like the little guy is stabilizing a bit. I'm so glad. Thank you so much for the updates. I really look forward to keeping up with how precious baby is doing. Take care of yourselves and rest (if you can). Know that you're on our minds.

Anonymous said...

I am thinking of you constantly and wishing you the best. I want to know how you are. Are you about to lose it yet or are you just on auto drive. Please take care of you and remember how many of us are thinking of you. I am so glad he is doing well. Can't wait to meet him! I will keep praying!


Anonymous said...

I love to hear that he is awake some and doing "well." How are YOU doing? Take care of you too, NICU mom. Thinking and praying for both of you....If you need me to help with kiddos let me know and I will do what I can. Love ya bunches. Kendra

Anonymous said...

We are still praying for you guys. Hang in there little Maverick we love you!
Love you guys,

Anonymous said...

Yay! Thank you Lord for answering our prayers. I'm thankful you had a good night. Thank you Juli for taking the time to post the helps us know how to pray and eases my mind. Still praying, Amanda

Kim said...

Hey sweet friend. You have been on my mind all day. I hated leaving you yesterday. I wish I could have stayed and held your hand. I was two hours from home when friend called and said that the kids would be out of school the rest of the week. I was so sad, thinking I could have stayed in Dallas a couple days longer. But know, that if you need me I will come up. I love you. I am lifting you, Greg, and Maverick up right now.