Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, October 12, 2008

A good day

Mav had a good day today. They're hoping to extubate him tomorrow or Tuesday. They started him on feedings down his tube and so far he's tolerating them without difficulty. His chest tube output on the right is slowly getting less and the left chest tube isn't having much output. Many things to be thankful for. He's off his epi, and is just on a small amount of milrinone.
Have I mentioned how thankful I am for all our friends and family? I cannot tell you how blessed we are to have each one of you in our lives. My sweet friend from Missouri, Kristi, flew in today and spent the day with us. She flew back out this evening. We had a great time. We just sat in Mav's room and watched him alot and talked and talked and talked. We also left the hospital and went to lunch. We had Mexican food. She says there are no good Mexican places in St. Louis (isn't that sad?).
I'll go for now and let you know how tomorrow goes. Thanks again to each of you - jc.
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1 comment:

Unknown said...

Well hello friend. I have been thinking about you and praying for you guys. I found out about this blog and have spent the last hour and a half catching myself up on all the details. You are such a strong beautiful woman and baby Maverick was placed on this earth in your care because God new that he needed a mom like you. Please let me know if there is anything Q or I can do to help. I can't wait to meet your newest family member. Hugs...
Kelley Lobb

October 13, 2008 at 10:13 AM

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