Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, October 25, 2008

Mav has had another pretty good day. They have taken him off the diuretic coctail and placed him back on a lasix drip (it's not as strong). His weight is down quite a bit, but he still has a way to go. They've weaned his ventilator a little bit - hopefully he'll be ready to be extubated sometime next week. His chest tube output is pretty stable at about 30-40mls/day. No big changes, but that's ok. He's looking alot more like himself.

My oldest daughter, Maddie, had her first school dance last night. Greg took lots of pictures and video before he dropped her off. The theme was "Dancing through the Decades." The kids could dress up from any decade they chose. Maddie was an 80's queen - complete with big hair and purple eyeshadow -thanks to my sweet friend Meredith. She had a blast - thanks, Meredith! I can't wait to see the pics. I'll try to post some when I go back to Shawnee next weekend. jc
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2 comments:

Anonymous said...

I am so thankful for his steady progress this week. I am praying, praying, praying.

I am so happy you and Greg are getting some time with the kids - you are so blessed with a wonderful family.

Love you! Kristi

October 25, 2008 at 10:45 PM
SBargsley said...

Hi Juli,

Sorry I haven't posted in a while, but I have been watching Maverick's progress. I know it's been a roller coaster for all of you but it looks like things are getting better. Hang in there. I will continue to keep Mav and all of you in my prayers. Can't wait to see pictures of your daughter dressed up for the 80's. I remember the big hair and teased bangs. Of course I never had that. :) Hang in there. Sherry Bargsley

October 26, 2008 at 6:40 PM

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