Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, September 26, 2008

Blue eyes

Mav has had a good day, despite not getting his chest closed.  I told Dr. M that we are not pushing to get it closed.  I want it done at the right time and don't want them to have to re-open it if it's done too soon.  He's actually two weeks old today - it's hard to believe.  All the days kind of run together.  Last night and tonight he woke up around 8:00pm and stayed awake for about 45 minutes.  He's very content during this time and just looks around with his big blue eyes and listens to whomever is talking.  He's looking much smaller to me - his head is even starting to shrink.  Hopefully in the next few days he'll be back close to his birthweight.  Love you all - jc
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3 comments:

Anonymous said...

I am so glad that you get to see his eyes and that he is staying awake for such a good amount of time. I can't believe he is 2 weeks old!!! God is good. We will continue to say it and we will continue to pray. How are the feedings going? Are the other kiddos coming to see him this weekend? Love you all, Amanda

September 27, 2008 at 12:14 AM
Anonymous said...

It's good to hear things are still going well! I hope you guys are now able to get some rest! You all remain in our prayers! Gaynell

September 27, 2008 at 9:17 AM
Dianna Black said...

Thanks for the update. I am so glad the surgery went well..we love and miss you all. Maddie and Carter were just precious on Sat. we just didn't have enough time with them...we will continue to ask God for his hand of protection on all of you.
Love and BIG hugs,
Dianna

September 28, 2008 at 9:33 PM

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