Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, September 21, 2008

One step forward - two steps back

A good night, then a difficult morning. Maverick had two chest tubes placed - one on each side for pleural effusions (fluid around his lungs). His coags (the parts of his blood that helps it clot) are a bit off, so they're keeping up with those. His heart function is still good as is his blood pressure. He is still very edematous and needs to stop third spacing (his blood vessels leak fluid into the tissues instead of keeping it in and processing it through his kidneys). Good news is his kidneys are still functioning well and he had 30mls of urine out this last hour. They have added more strong antibiotics. All of his cultures are negative, but they say he's a set-up for infection, so they're just trying to stay ahead of things. It's just hour by hour. Wish we could fast forward a few days from now. Dr. M. says he thinks he just needs time and he's encouraged that his heart and kidneys are functioning well, although he is still very critical. Keep praying. This whole experience has brought new meaning to "pray without ceasing" for me. Thanks for your thoughts and prayers. Please forgive me if you've called and I haven't called you back. I just haven't felt like talking. I'll keep you all posted.

P.S. Mom and Brown left yesterday. The kids will be back at home later today and back in school tomorrow. I'm not sure they'll want to talk about all this too much, though. Thanks jc

1 comment:

Shawn & Amber said...

Praying this for you today:

Because of His great love we are not consumed. His compassions never fail; they are new every morning. Great is Your faithfulness. I will say to myself, "The Lord is my portion. Therefore, I will wait for Him."
Lam. 3:23-25
Love, Amber