Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, November 12, 2008

FW: mav

Mav has just stayed pretty steady today. His milrinone is off, otherwise no big changes. His weight was up to 4.7kg from 4.6. BUN and creatinine are about the same. His abdominal drain has been putting out a fair amount and he was negative 44mls for the dayshift (his intake and output). The intensivist says they just have to continue supporting him until he can mobilize the fluid - he sounded a bit discouraged today that things aren't moving more quickly.

Mav is two months old today. The nurses made him a card and gave it to me. I just about cried - not because it was so sweet (which it was), but I just thought, "we should not still be here - he's two months old." To say this has been difficult is a huge understatement. Please keep him in your prayers - we need to get this fluid off.

Greg and the kids are coming down on Saturday. The kids are looking forward to seeing Mav. I'm looking forward to seeing all of them. We're having an early Thanksgiving with my mom and brother on Sunday, then mom, the kids, and I will go back to Shawnee. Greg is staying with Mav next week. More tomorrow - jc

3 comments:

Jean Williams said...

Dear Julie, Sandy, and family,
Our thoughts and prayers are with you daily. Little boy is on our prayer list at church and we have prayer for him and your family every Sunday morning. Praying that little Maverick will be well soon and you will all be able to come home and put this experience behind. He is so precious, I wish I could hold him.

With love and prayers,

Jean

Anonymous said...

We have so much to be Thankful for this year. He is so beautiful. It is amazing how he looks the same in the ultrasound pictures. We continue our prayers for you.

Thank the LORD because He is good. His love continues forever. Psa. 106:1.

Teresa

Anonymous said...

Julianne,
I just got back from NC and back on my computer. He looks so sweet and so alert for a two-month-old whose been through so much.I'm glad he's doing better and that Greg is doing better also. You guys are always in my prayers. All the staff here at Norman Regional are always asking about Mav and you and you are in their prayers too. Love you lots!!!! Hope to see you soon.
Michelle