Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, November 6, 2008

Mav has been behaving pretty well today. During the night last night they were able to turn his ventilator down a little bit and decrease his nor-epi. He's had some more output from his abdominal drain. All these things said, it seems as if he's not hanging on to as much fluid. He's still not letting go of much, but I think it will just take some time. At least he's not continuing to gain alot of weight. They haven't made any major changes today and probably won't tonight, either. Greg is going back home this weekend and will stay with the kids next week. I'm staying here and my mom is coming down to stay with me. The next week we're switching places. I had a dream a few nights ago that I went back to work and he was in the hospital in OKC and I would go by and check on him. I SO hope that won't be the case. Just wanted to thank everyone for the posts, cards and prayer-grams. We appreciate all of you. jc
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