Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, November 13, 2008

FW: mav

Mav finally lost some weight yesterday. His weight was 4.48kg. His bun and creatinine are still high, so they just have to try to carefully manage his losses while trying to give him the fluid he needs for circulation. He's still pretty puffy, but not quite as bad. He's very alert when he's awake and still likes his mobile and paci. He has a new rainforest aquarium toy that he also likes to watch. Poor little guy, I know he has to get tired of just laying around. I just can't wait to hold him. He still has two right atrial lines, two central lines, a right femoral arterial line and his left abdominal drain, along with his nasotracheal tube - so I suppose it will still be awhile before that happens.

I had a fun visit from my Shawnee friends Dianna, Dorraine, and Polly today. They got to see little Mav and then we went to lunch at Blue Mesa. We had a great time and laughed alot. Ask Dianna and Dorraine about their aliases next time you see them... Thanks to everyone who sent gifts, cards, and goodies - you all are so sweet and generous. My mom said I am so lucky to have such good friends and I know she's right. I miss all of you.

Greg and the kids are coming this weekend. It sounds like they've had a pretty good week. I can't wait to see them!

I'll try to post later today - jc


Anonymous said...

I'm glad to read of Mav's prorgress, the little things that we can be so thankful for! By reading your daily posts, you have reminded me of all the things we take for granted. My family and I continue to pray for Mav's complete recovery and for your strength and peace through it all. May God's grace continue to be with you, lp

Anonymous said...

I just wanted to say thank you so much for continually posting updates and photos... sharing such an intimate time of your lives with us all... allowing us to be a part of your hopes and fears and to offer our prayers for your family through this difficult time. It is said that the true character of a person can be seen during times of trial and your family has shown such faith and courage. We love you all and continue to pray for your family's health... we pray that you can all be home together soon cuddled up enjoying each other the way it should be. We love you all so much.
Hugs- Gordona

Anonymous said...


He just looks happier every day!! He is so darn cute. And what a fighter. We continue to pray for all of you every day.

Love, Carol and family