Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Wednesday, November 19, 2008

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Here's Mav today. He's been opening his eyes and looking around. He's doing well with the dialysis. His BUN and creatinine are still high - just waiting for those to come down. He's had a little urine out today. He had his stitches taken out earlier this week and it looks like his incision is healing well. His weight was 4.3 kg today. He's slowly getting there.

The kids and I are doing well. Mom is still here with me. I had lunch with some of my sweet friends today. It's good to see everyone and catch up.

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6 comments:

Anonymous said...

Such a sweet & beautiful family you have! Glad to see Maverick is improving.

November 19, 2008 at 8:52 PM
Anonymous said...

Such a sweet & beautiful family you have! Glad to see Maverick is improving. Will continue to keep you all in prayer.

Sherry

November 19, 2008 at 8:55 PM
Anonymous said...

I want you to know I am praying for you and your family.

November 20, 2008 at 2:46 PM
Anonymous said...

Juli - I don't know if you have ever heard this song called "He's My Son" but they played it during the KXY Radiothon that I worked at last week. To me, it describes what you are going through and hope for. We are all praying for Maverick and glad he is doing better each day...we love you. Teresa

Here are the words:
I'm down on my knees again tonight,
I'm hoping this prayer will turn out right.
See, there is a boy that needs Your help.
I've done all that I can do myself
His mother is tired,
I'm sure You can understand.
Each night as he sleeps
She goes in to hold his hand,
And she tries
Not to cry
As the tears fill her eyes.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Sometimes late at night I watch him sleep,
I dream of the boy he'd like to be.
I try to be strong and see him through,
But God, who he needs right now is You.
Let him grow old,
Live life without this fear.
What would I be
[ Mark Schultz Lyrics are found on www.songlyrics.com ]
Living without him here?
He's so tired,
And he's scared
Let him know that You're there.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place some how.
See, he's not just anyone, he's my son.

Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow.
See, he's not just anyone.

Can You hear me?
Can You see him?
Please don't leave him,
He's my son.

November 20, 2008 at 9:12 PM
Anonymous said...

I meant to give you the link so you could hear the song...it is:

http://www.youtube.com/watch?v=ppQ0QjmuEt8

Love you, Teresa

November 20, 2008 at 9:25 PM
Anonymous said...

Will pray for Maverick, best of luck

November 21, 2008 at 7:46 AM

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