Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, November 7, 2008

Multimedia message

Here is Mav today. He's slowly doing better and actually losing a little weight for the first time in a long time. He's at 4.9kg today - just over 10 1/2 lbs (I think his high this week was 5.3kg. They've weaned his ventilator a little today and also his epi drip. They've also turned down his vecuronium (the paralyzing medicine) a little and are slowly going to see how he tolerates it. They've also turned off his diuretic coctail and had stopped replacing the output from his abdominal drain (they started replacing it 1/2ml per ml this evening, though). His face is actually looking a little less edematous. We are very encouraged by his progress - however slow it is. jc

5 comments:

Anonymous said...

He's definitely looking better. I plan to see you and him tomorrow (Sun) afternoon. Is there anything that I can bring for you?
I love you,
Mom

Anonymous said...

Thank you for being so faithful to keep everyone updated on Maverick. He is so precious.
Love,
Lu Anne

Dianna said...

You all are in my constant prayers...little Mav does look good..I am so grateful for the good news...I can't wait to see you ALL :)
Dianna

Anonymous said...

oh Juli, you can tell he is less swollen! We are so excited. I am praying you will feel strengthened and continue to know God's presence. Enjoy your time with your mom. I know her presence will bring such strength to you. Love you guys, amanda

David said...

His little face just looks so good. He's just so perfectly pink! Glad to hear that he's stable enough that you and Greg can start switching in & out again. I'll give Greg a call this w/e to find out what we can do to lighten the load. Take care, Juli. I'm happy that your Mom can come down and be with you and baby.