Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Friday, November 28, 2008

"I fix him"

This is actually a post from Saturday, I guess I sent the pic on Friday and it put this update under Friday. This is Chloe on Wednesday. The nurses gave her a doctor bag and some goodies. She put them on, looked at Mav and said, "I fix him". If it were just that easy... He's doing fair today. They had changed his dialysis to every other hour and had to go back on hourly because he wasn't getting enough fluid off. He has been urinating a little bit more overall, but still has a long way to go. His BUN is still in the 60's and his creatinine is 1.4. They did a pressure support trial on his ventilator today (it's a little trial to see if he's ready to come off the vent). He didn't do well the first time, but they did it again this afternoon and he did pretty well. His vent rate is only at 8 right now. Hopefully, he'll be off the vent in the next few days. He just looks a little puny today. His fluid from his dialysis catheter is cloudy. They send cultures on it every day to check for infection (so far they've been negative - no infection), and they were sending a sample this evening to check for triglycerides to see if the drainage is chylous (from the feedings). So, we'll just see how things go. He is on his own time schedule. I'm really thinking that home for Christmas is out of the picture unless something miraculous happens. I'm praying it does, though! More tomorrow - jc

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