Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Saturday, November 1, 2008

Mav had a bit of a hard time after getting out of the cath lab, but they gave him some blood, sedated and paralyzed him, and changed his vent settings and he was doing better this morning when I left. He was restarted on a little bit of nor-epi. He is still retaining alot of fluid and is so edematous again that he can't open his eyes. His BUN was down to 60, so they restarted the diuretic coctail this morning to try to get some fluid off prior to surgery on Monday. I'm back in Oklahoma with the kids until Monday morning, then Greg and I will both be in TX next week for surgery and the following days. Just say a prayer that he can lose some more fluid and stay stable until surgery. Thanks - jc

P.S. I'll post some pics this evening. We're getting ready to go to the park. The weather is great.

1 comment:

Anonymous said...

Greg & Juli~

We will be lifting up you guys and Little Mav all day tomorrow. All 33 families in the home school co-op will stop and pray in the morning before classes. May the morning bring you word of His unfailing love. May the events of 11-03-08 be marked with peace and joy and miracles.
You are loved,
The Crawleys