Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Sunday, November 9, 2008

They have turned off the paralyzing medicine today. He has his little eyes open and is making sucking movements with his tongue, but he's not moving anything else yet. They're trying him on a different setting on his ventilator to see if he'll tolerate breathing some on his own. He's still pretty edematous, so it's a little difficult for him to breathe. Say a prayer for him -hopefully he'll do ok. He's still on all the drips, they'll wean those if they can. Just very slow progress. Thanks for your comments - I enjoy hearing from you all - jc

2 comments:

kathy huffines said...

Hi Juli my name is Kathy I have been praying for Maverick an your family sence befor Maverick was born. My daughter and her husband go to your church.Our oldest daughter was born with a heart condtion we've spent many a day in hopitals I truly know what you are going through we were told no matter what that our daughter would die by the time she was 5 but she is in Gods hands she even went in to total renal failure for a month she was in a coma an things did not look well all this said we have many years of surgerys behind us and she'll alwas need to be under the care of a doctor but in just under 2 months she will be 27 years old we are so thankful for all God has done I will never take for granted the time I have with any of my children I know God is in control an I will be thankful for anytime He gives them to me I know that sometimes it seems imposible but I pray that God wrapes his arms around you and your family. May God countinue to bless you and your lovely family. Kathy

Anonymous said...

Lord I pray for baby Maverick today. We know you are the great physician. Please heal maverick. Please let him be able to tolerate being off the meds and equipment so his family can be back together completely. Lord I ask you to be with Greg, Juli and the "big kids". Give them peace and strength as they are away from each other. Give them also the finances needed. Lord be with the doctors as they watch over Maverick. Give them knowledge, clarity and rest so they can fully care for this baby. Be with the nurses. Give them compassion Lord. We love you and trust you even when we can not see your will!