Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Thursday, November 20, 2008

Multimedia message

Mav is awake more today and looking at his mobile and aquarium. Labs are about the same - creatinine down a little, making a little urine, weight is 4.21kg ( about 9 1/4 lbs). Seems like he's heading in the right direction, just needs to get some more fluid off and start making more urine. I'm missing him. I think the kids and I are going to go to Dallas Saturday and stay through the Sunday after Thanksgiving. My sister-in-law, Shelley, has a sister that has a house in Frisco where we'll be able to stay. They are out of town right now. It will be nice for all of us to be together. It's been a long time since we've been able to hang out as a family for more than a few hours.

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1 comment:

Anonymous said...

Hi Juli,

So happy to hear that the family will be together for several days. That means a lot, I know. I have asked friends and prayer chains to pray for Mav and your family as well. The power of prayer is wonderful. Thank you for your daily blogs. Can't wait until Mav can reach up and grab that mobile!
God Bless you all,
Sherry

November 21, 2008 at 4:34 AM

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