Baby Maverick

Mav is hanging in there. His BUN and creatinine are still on the rise (BUN in 90's and creat 1.8), but the drs and nurses tell us that it's not unusual for them to rise for a few days after being placed on dialysis before they start trending downward. They have increased the amount of dialysate they are placing in his abdomen and he is now having 15-20mls per hour net out his dialysis drain. That is up from yesterday. His weight today was 4.55 kg - down 300gms from yesterday. Through all this they have been able to wean him off the epi drip, so he isn't on any drips for his blood pressure now. He's had 4mls of urine out today so far. He only had 4 out for the entire last 24 hour period - maybe he'll break his record tonight. He is still paralyzed and sedated, but they may turn off the paralyzing drug in the next few days. His CRP (lab that indicates inflammation/risk for infection) is now at 8 - down from 24 yesterday - still not normal (for him it's been <2).

I was talking on the phone this morning and started crying. Chloe was watching me and when I got off the phone she asked, "Mom, why you crying?" I told her I was sad that Maverick is sick and I just want him to get better. She said, "Be happy." I said, "I'll try to be happy for you." She said, "No, for Maverick." Sometimes the best advice comes from your children.