Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, November 17, 2008

Mav is hanging in there. His BUN and creatinine are still on the rise (BUN in 90's and creat 1.8), but the drs and nurses tell us that it's not unusual for them to rise for a few days after being placed on dialysis before they start trending downward. They have increased the amount of dialysate they are placing in his abdomen and he is now having 15-20mls per hour net out his dialysis drain. That is up from yesterday. His weight today was 4.55 kg - down 300gms from yesterday. Through all this they have been able to wean him off the epi drip, so he isn't on any drips for his blood pressure now. He's had 4mls of urine out today so far. He only had 4 out for the entire last 24 hour period - maybe he'll break his record tonight. He is still paralyzed and sedated, but they may turn off the paralyzing drug in the next few days. His CRP (lab that indicates inflammation/risk for infection) is now at 8 - down from 24 yesterday - still not normal (for him it's been <2).

I was talking on the phone this morning and started crying. Chloe was watching me and when I got off the phone she asked, "Mom, why you crying?" I told her I was sad that Maverick is sick and I just want him to get better. She said, "Be happy." I said, "I'll try to be happy for you." She said, "No, for Maverick." Sometimes the best advice comes from your children.


Anonymous said...

Juli, the pic of Maverick does look better! Hang in there. Will continue to pray.


Here's a bible verse that I would like to share:

"So do not fear, for I am with you; do not be dismayed for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." Isaiah 41:10

Anonymous said...

Just wanted to let you know that you are all in our prayers!! As Spence told you today, please let us know if there's anything we can do.