Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Monday, November 3, 2008

He's back in the PICU. He looks so much better. His chest is closed and he has a mediastinal tube. I can already tell he's lost alot of fluid. He's on an epi drip and milrinone, he has pacer wires in and is being paced right now. His capillary refill in his feet is brisk and that's a first for him. They're getting ready to give him some blood. We are so relieved and thankful. Hopefully he'll continue to have a good night. Thanks for all your thoughts and prayers - love you all - jc
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5 comments:

Unknown said...

Hi Juli & Greg,
So glad that baby's surgery went so well. What a relief. Now his little body won't have to work so hard and he can focus all that effort on just getting better. I'll be thinking about you all and hoping for steady forward progress.
Take care and thanks for taking the time to keep all of us updated.
Love,
Meredith

November 4, 2008 at 5:48 AM
Anonymous said...

Yay,God! Thank you for Drs. and nurses whom You have gifted so specifically for Little Mav. We praise You for this great news, and ask that You fill the coming days with rest and more rest for his mommy and daddy. We look so forward to more miracles and to meeting this little guy. Thanks for keeping us all updated. Your courage is blessing so many.
The Crawleys

November 4, 2008 at 7:55 AM
Anonymous said...

YEAH!!! How encouraging! I pray that God will continue Mav on this healing path.

Love you - Kristi

November 4, 2008 at 8:16 AM
cindy said...

Sounds like everything went good. I'm so glad to hear that. Got your text message - I didn't have my phone yesterday. Thinking of you and sending all my love and prayers!

November 4, 2008 at 11:46 AM
Anonymous said...

Can't wait to see a new pic!!! Love you guys, Amanda

November 4, 2008 at 1:42 PM

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