Baby Maverick

This blog was created to keep family and friends updated on what's going on with the pregnancy, birth, and surgical plan for Maverick. We'll also be able to keep everyone updated during his surgery and recovery and hopefully be able to show you some cute pictures of him, Maddie, Carter and Chloe along the way.

This was the original intent; however, when we started this blog we had no idea the twists and turns our lives would take. Our sweet baby Maverick was born September 12, 2008 with Transposition of the Great Arteries, ASD, and VSD. We expected to have a baby boy to bring home three to four weeks after his surgery. He had numerous complications after his arterial switch and fought through many that would have taken the life from an adult. He passed away February 24, 2009 - without ever coming home.

This blog is now a place I share my feelings, work through the grief, remember Maverick, and try to make sense out of our life without him. I hope in doing so I am giving a name and a face to babies everywhere born with congenital heart defects.

Tuesday, November 18, 2008

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Maddie and Mav on Sunday
Maddie, Carter and Chloe with Mav Saturday - he was a sick boy.

Here is Mav today. They have turned off his vecuronium (the paralyzing drug), so he should be able to open and close his eyes soon. It stays around for awhile so it may be tomorrow before he starts moving. His weight today was down to 4.49kg. His blood pressure is remaining stable. His CRP (the inflammation/infection indicator) was <2 class="blsp-spelling-error" id="SPELLING_ERROR_5">creatinine haven't changed much, but hopefully tomorrow they'll start coming down. He had a total of 6mls of urine out yesterday and has had 4mls out so far today. Greg says his color is much better. This little incident has given us quite a scare, and we're not out of the woods yet, but at least the infection seems to be under control.

I'm enjoying being back in Shawnee with the kids, but I miss being with Mav, too. It's a little easier to leave him when he's a little more stable. I try to go about my somewhat normal day, but it's hard to stay focused on anything. It's also difficult seeing his empty crib and bassinet. As for Greg, it seems as if we just see each other in passing right now. He's keeping an eye on the little one and lets me talk to him everyday via cell phone.

Just got another update from Greg and Gloria, Mav's nurse tonight. He is negative 116mls so far today - that means he's lost almost 4 oz of extra fluid. His BUN and creatinine have risen a little, but he's had 16mls (just over 3 teaspoons) of urine out in the last 3 hours!

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